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IT'S NOT A TUMAH.. oh shit, yes it is. [Archive] - RonFez.net Messageboard

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Skellington
02-10-2009, 12:11 PM
Adventures in Radiation, lop-sided tattoos, and not actually having Cancer. A Mind Dump: By Skellington

I'm 2,500 miles from everything I know. I'm single. I have my own place with my two dogs and grumpy, spleenless ferret. I have a autoimmune disorder and a tumor on my thyroid. I don't have cancer. No cancer, but... I am currently under going radiation treatments twice a week, every Tuesday and Friday, until I complete 16 sessions or turn into a burnt crispy. Today will be session #5, 11 more to go.

I have a really nice tech. In January, I had a RAIU (radioactive iodine uptake) done to figure out just what was going on with me after a questionable ultasound of my thyroid was done after remarkable blood tests were returned showing I had hashimotos... which is fairly common and not that big of a deal....unless you are missing half of your thyroid and have a sizable tumor on it that sticks out when you turn your head, and all this time you thought that was just a muscle and were retarded at swallowing your food. Back to the RAIU. It's makes you radioactive for awhile. My tech explained that when I used the toilet, I must flush twice, no sex, wash my hands often, and it's not a good idea to sleep with the dogs because sweating on them would be getting radioactive on them.... So i asked if i used my vibrator, would it grow a few more heads, because that wouldn't be so bad..... he's a nice tech and blushes easily.

Although my tech is nice and understanding to my horrible and perverted humor, he's a shit tattooist. All he had to do is get two little dots on my neck. Move everyone has seen the amount of tattoos i have. I was expecting two...tiny...symetrical dots. Right? Ugh. A retarded vampire ran into me and left this:

http://farm4.static.flickr.com/3100/3233141746_cc0fbc4348.jpg

Thankfully, they are much smaller now. Still lop sided, still in a weird area, but apparently when they are zapping me and my head is in this protective cage thing tilted back, they line up just right. So why the radiation if I don't have cancer? yeah, I asked the same question ironically. It seems when you get a parasitic tumor and have a autoimmune disorder that attacked organ cells, the first thing that the HMO permits is not organ removal, because that would be way toooooo easy. No, i got a lymphnode extraction, and needble biopsy, and when the cancer signs were negative, the insurance only approved frying the crap out of the parasitic tumor (parasitic as in, it acts like a thyroid by sucking up the iodine, but doesn't do much else) to shrink it, and deactivate what is left of my thyroid. Once the tumor shrinks, i'll be able to eat food and actually swallow it without tilting my head back oddly. And i'll be able ot take my medicine and have it work. The thyroid is apparently the source of my autoimmune thingy, and they hope by deactivating it, my body stops trying to eat it's organs. I can do with out my pancreas and thyroid, but attacking the heart is slightly major. It actually hurt. I just broke up with my fiancee' 2 months ago, and that has nothing on tissue attacking tissue. Ouch!

So here I am, lop sided tattoos, lumpy, underweight (122lbs, they want me at 130lb apparently), and kind of burnt. The outside is looking fine, but my throat is scratchy and my mouth feels like i drank a vat of excessively hot soup then ate a granola bar and tore it up. Slurpee's are my friend. So is wine. Wine sterlizes it, is good for the heart, and makes me silly. Corona and I broke up after the breakdancing to Britney spears at the bowling alley incident occurred. Where was i....

I'm venting because i'm annoyed. I'm still working, although I have the option to go on short term diability if I desire. My family is on the east coast, i'm stuck in phoenix paying a 20k medical bill from when i got Shingles last year and technically did have insurance, but no card, so they charged me. That bill is now 10k. I moved here to be with who I was going to marry...and am not engaged anymore. I guess you don't figure out certain things until you just go about doing them. VA sucked, but my family was there. Working for the gov't for 10 years sucked, but it was good pay. I'd really like a significant other that appreciates me cooking in my underoo's, or at least can wake up and know who the fuck I am.

I guess it isn't all that bad. It isn't cancer. I'm just perplexed that there is the possibility that i'll go through all this treatment...then the tumor will inflame again, THEN they will go in a remove the thyroid and parathyroids. Why not just do it now, it's not like the damn thing has any possibility of working anyway. I've argued this to 2 endocrinologists out here. They claim that my HMO will not pay for surgery this early on unless it's cancerous, or i'm in my late 30's, because apparently then you are old enough to part with a organ that isn't functioning.

I've got my dogs. My saving grace are my dogs. The little (big) girl I adopted in october has blossomed from a abused, skittish wreck to my shadow:

http://farm4.static.flickr.com/3444/3255133879_864b2cd8a5.jpg

When they wake up, they know who I am. They might be a little racist and embarassing at times, but they make up for it by dropping their giant rawhide on my head in the middle of the night.

Where was I going? Right. I'm radioactive and am waiting until I glow a irridescent green. Then I can save on electricity and be able to pay even more of my medical bill that I really don't owe back, so I don't ruin my credit, so I can give my dogs a backyard to play in one day once i move back to VA and hug my parents, then slap them and all of my friends for letting me move 2500 miles away.

I need to write a book that no one cares about reading.

~Katja~
02-10-2009, 12:21 PM
I am sorry you are going through all this, and feel alone... I have one question though, if you had insurance at the time and just not the card on you they are still obligated to pay your expenses after you submit it. What happened there???

Dougie Brootal
02-10-2009, 12:24 PM
damn. thats pretty harsh. i noticed you mentioned radiation on your myspace the other day and was meaning to ask whats up but i didnt get around to it. and are the tattoos real permanent tats or will they go away when your done? anyways, i hope you start to feel better. and insurance companies suck ass.

boosterp
02-10-2009, 12:25 PM
Wow, saying that I feel for you may sound cliche, but I do. Having to go through this shit, fiance-less, and distant from your family sucks ass. I wish you the best and hope for resolve.

Keep us updated.

ChrisTheCop
02-10-2009, 12:35 PM
I'm glad you knew you could come to us, and that you remember youre never truly alone as long as RonFez.net exists.

My thoughts are with you. It's a tough time, but youre a tough chick,
and I look forward to reading your book!

Be well.

drjoek
02-10-2009, 12:43 PM
Hoping for better days for you.

jauble
02-10-2009, 12:46 PM
Best of luck to you and the dogs. I'm dealing with medical insurance right now too, quite the pain in the ass.

Edit: On a complete side note, I really enjoyed your thread title.

Skellington
02-10-2009, 12:58 PM
I am sorry you are going through all this, and feel alone... I have one question though, if you had insurance at the time and just not the card on you they are still obligated to pay your expenses after you submit it. What happened there???

It's a clusterfuck that i'm still going back and forth with the doctor, insurance company and HR about. I transferred from a gov't entity of my company to the construction side, 2500 miles apart. Different insurance carriers. I was debriefed from one side, and started on the other, my insurance should have been seamless, but there was confusion, so i ended up with the bill that i don't owe. now i could just not pay and wait for the insurance company to suck it up, right? Wrong, they'll send me a collections notice and there goes my beautiful credit. so i'm stuck paying it until they figure it out. May will be a year that this is going on. When I eventually do get my money back, i'm going to ask for interest.

Gvac
02-10-2009, 02:45 PM
Wow. Tough year, huh Skell?

Hang in there, kiddo. I hope thing turn around for you real soon.

hammersavage
02-10-2009, 02:46 PM
Better to get the bad out of the way and let the good roll over you. Good luck with everything.

razorboy
02-10-2009, 02:51 PM
Sounds like a nightmare. I hope things turn around for you soon, Skelly.

~Katja~
02-10-2009, 02:51 PM
It's a clusterfuck that i'm still going back and forth with the doctor, insurance company and HR about. I transferred from a gov't entity of my company to the construction side, 2500 miles apart. Different insurance carriers. I was debriefed from one side, and started on the other, my insurance should have been seamless, but there was confusion, so i ended up with the bill that i don't owe. now i could just not pay and wait for the insurance company to suck it up, right? Wrong, they'll send me a collections notice and there goes my beautiful credit. so i'm stuck paying it until they figure it out. May will be a year that this is going on. When I eventually do get my money back, i'm going to ask for interest.

a year seems like a very long time for them to figure this out, I would not have the patience and make fire under their asses and threaten with lawyers every day.

I bet when time comes they will not give you any interest or special treatment when paying back. Damn bastards!

Freakshow
02-10-2009, 03:55 PM
hugs. I don't know what else I can do. I can flood you with cute dog pictures if it would make you feel better?

Leticia
02-19-2009, 11:53 AM
Holy Crap!! Sounds like you're going through a lot.

It looks like you're handling it pretty well, though. Insurance companies suck! Ugh. I really hope that gets settled!

The dots on your neck look pretty small and might fade over time. I doubt they're using premium ink.

Good luck! You sound really strong and better than I would have been in this situation.

keithy_19
02-21-2009, 10:36 PM
That's awful. You'll definately be in my thoughts and prayers. I can't say how much I admire you enough. Your sense of humor in times of trouble is inspirational.

And I really enjoyed reading you're thread. Not that sickness is stuff I enjoy. But you have a way with words. I'd gladly read your book.:smile: