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ryno1974
08-31-2010, 02:00 PM
Tomorrow (September 1st) is the 6th anniversary of my daughters death. She died at 4 months old from complications from Digeorge syndrome, ore specifically congenital heart disease. She spent her whole life in hospitals, the first three weeks in Winnipeg (our hometown) and the rest of her time at Stollery Childrens Hospital in Edmonton.

Time has passed and things have gotten no easier - just different. I still miss her everyday. I actually think that the one off days are harder than the anniversary's. Things like the first day of school for the other kids (that she will never have) or going camping and watching the other kids go fishing. The thing I find the hardest is the feeling alone. My wife is an incredible person and so very supportive, but I still feel all by myself. People for some reason ask how she is doing at times like this as the grieving mom, but the dad always kind of seems to fade into the background. I try to support her, and I like to think I am good at it, but being a guy unfortunately means being strong, silent, stoic. We are here to be the rocks, not to be the sad ones.

Friends (at least the very few close ones that I have) are supportive, but casual acquaintances either don't know, or don't remember. I think the fading of the memory for others is normal - we all know people who have died that we slowly forget about until they are mentioned to us, but it doesn't fade for me. I am reminded of what happened everyday, either through pictures, memories, or when all else fails the tattoo I had done after she died. I have been a complete bitch at work to all my guys for the past two weeks, no doubt because of this particular day coming up. Not their fault, but I am only human.

Any way, rant over. Thanks for listening.

Daddy misses you Kaity, wish you were here playing with you brothers and sister.

Jujubees2
08-31-2010, 02:17 PM
Ryno,

I can't even begin to imagine your pain. To have a child taken from you at that young of an age has to be the toughest thing anyone can go through. And I'm sure it's hard when others don't take your feelings into consideration when asking how your wife is doing. Honestly I would probably do the same thing, thinking the woman is the one who needs the support but I totally understand where you're coming from. Don't be afraid t share your feelings with your wife.

As the father of two, I am thankful every day for their health and safety.

Your family, especially Kaity, is in my thoughts and prayers.

Dudeman
08-31-2010, 02:28 PM
Sorry to hear this. If it is something you think might help, I'm sure there are support groups for parents with children who have DiGeorge Syndrome. Perhaps you could reconnect with the social workers or pediatric geneticists at your hospitals for recommendations.

sailor
08-31-2010, 02:31 PM
Very sorry to hear this. :(

disneyspy
08-31-2010, 02:32 PM
hey man,of course theres not much any of us can say to help,but keep your chin up and i wish you well

Kevin
08-31-2010, 02:38 PM
I don't wish what you went and are going through even on my worst enemy.

If you believe in an afterlife, take solace in the fact that you will see her spirit again.

Best of luck brother.

Snacks
08-31-2010, 02:56 PM
Sorry for your loss! I think it has always been tougher for guys to get the help they need during times like this. There are many things that always seem to be geared towards women for support but men seem to go through these things alone or with limited support. I hope you get the support you need. Asking for help or talking to someone and showing emotions doesnt make you any less of a man.

Try to do something with your wife tomorrow and make the day a good memory rather then a sad reminder! Best of luck!

Justice4all
08-31-2010, 03:17 PM
Very sorry to hear. I wish I had something poignant to say. I am sorry for your terrible loss. Just remember how precious our lives are. Love your wife and children. It's a wonderful thing to see how much love you still carry for Kaity.

I am sorry and hope your pain eases over more time.

Caseyelan
08-31-2010, 06:17 PM
Thinking of you and your family. You are both very strong and My heart just breaks for your loss. I am hugging mine extra tight right now and hope you can feel the love all the way from our lil jersey town. XOXOXO

spoon
08-31-2010, 08:28 PM
Take solace in the fact that you loved that little kid as much as possible when here and still now. That's ultimately all you can do in the end. You sound like you did everything possible and sometimes it simply doesn't matter. Remember the kiddo by being a better person in her honor.

ryno1974
09-01-2010, 06:46 AM
Thanks everyone.I dont really need anything - just somewhere to blab out my thoughts once in a while. Its nice to know I have that place here.

Heading out with the family for a nice relaxing day of letterboxing.

dereckfishboy
09-01-2010, 06:58 AM
As a father, you have the greatest amount of sympathy I have to offer.... My heart aches just hearing of your pain....

JPMNICK
09-01-2010, 07:19 AM
Take solace in the fact that you loved that little kid as much as possible when here and still now. That's ultimately all you can do in the end. You sound like you did everything possible and sometimes it simply doesn't matter. Remember the kiddo by being a better person in her honor.

could not have written anything better then this.